Since being diagnosed with trigeminal neuralgia, it went from bad to worse. Even with the maximum dosage of Pregabalin and a thrice-a-day dose of Tegretol, the pain in my face was an almost constant 8-9 out of 10. I like the following pain scale, because it also shows my mental state.
Not only was I reeling from the Tegretol, but I was almost incapacitated with facial pain, which somehow is so much worse than pain in something further away. I was taking huge quantities of medications designed to control this pain and it just wasn’t working.
So I put all my hopes on a blood vessel touching my trigeminal nerve somewhere so they could perform microvascular decompression, which is this really cool brain surgery where they stick a little sponge between the blood vessel and the trigeminal nerve and voila, around about 7 years of no pain!
The MRI showed up nothing. Everything was fine. Nothing was even vaguely touching the trigeminal nerve. There was no explanation for why I had trigeminal neuralgia.
I had a complete meltdown. I was really banking on the MRI showing something, and it didn’t.
The next day I booked in for acupuncture. I have now had three acupuncture sessions, and I’m just about to go to my fourth.
After the first acupuncture session my pain went down to a 2-3. I stopped taking my midday Tegretol, so I was down to twice-a-day Tegretol. After my second acupuncture session, my pain went down to a 1-2. I was moving that week, so every once in a while I would have a flare up to a 7. The CBD Living Freeze (they don’t pay me for this shout out) has been a godsend for these flareups. I roll it all over my face, fan the eucalyptus and menthol fumes away from my eyeballs (it buuuuuurns), and my face feels normal again!
I have a mild worming pain across my zygomatic arch right now, and a bit of a bone eating sensation in my jaw, but the consistent pain rarely gets above a 3. As I said before, I am just about to go to my fourth acupuncture session, and once my nerves have settled down from that I shall drop my Tegretol down to once a day.
My goal is to completely come off Tegretol and regain my brain and my waistline!